Telehealth Home Monitoring and Postcardiac Surgery for Congenital Heart Disease.

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Lisanti: 0000-0002-1826-6152

Curley: 0000-0001-5228-6694

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OBJECTIVES: To test the effect of a 4-month telehealth home monitoring program (REACH), layered on usual care, on postdischarge outcomes in parents of infants recovering from cardiac surgery and their infants.

METHODS: Randomized trial of infants discharged from the hospital after cardiac surgery for congenital heart disease. Consecutive infants with complex congenital heart disease undergoing cardiac surgery within 21 days of life were enrolled at 3 university-affiliated pediatric cardiac centers.

RESULTS: From 2012 to 2016, 219 parent-infant dyads were enrolled; 109 were randomly assigned to the intervention group and 110 to the control group. At 4 months postdischarge, parenting stress was not significantly different between groups (total Parenting Stress Index in the intervention group was 220 and in the control group was 215;

CONCLUSIONS: When added to usual care, the REACH intervention was not associated with an improvement in parent or infant outcomes. Four months after neonatal heart surgery, ∼20% of parents demonstrate PTSD symptoms. Suboptimal infant growth and hospital readmissions were common.


Adult, Female, Growth Disorders, Heart Defects, Congenital, Humans, Infant, Infant, Newborn, Male, Monitoring, Ambulatory, Parents, Patient Readmission, Program Evaluation, Quality of Life, Socioeconomic Factors, Stress Disorders, Post-Traumatic, Stress, Psychological, Telemedicine, Treatment Outcome



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